Every mile will be worth her smile
On October 7, 2018 I will be running the Bank of America Chicago Marathon as a member of a charity team representing Advocate Health Care. October 7, 2018 also happens to be my daughter, Loralai’s, 3rd birthday. It is because of the excellent care from the doctors with the Advocate Medical Group that Loralai will be celebrating her 3rd birthday happy and healthy.
This past year, Loralai was diagnosed with Williams Syndrome. WS is a genetic condition characterized by medical problems including cardiovascular disease, developmental delays, and learning challenges. These often occur side by side with striking verbal abilities, highly social personalities, and an affinity for music. If you have had the pleasure of spending time with Loralai, you have most likely fell victim to her infectious smile and huge personality. We don’t know what the future looks like for her, however we do know that she is healthy thanks to the Advocate Health Care Team.
In March of 2017, Loralai had a cardiac catheter procedure done due to a diagnosis of pulmonary stenosis (narrowing of her right pulmonary artery). Her cardiologist has been a crucial part of her health care team and was the person to get the ball rolling on her genetic testing. Other members of her team include a geneticist, ENT, ophthalmologist, endocrinologist, and a few other physicians to check calcium levels, thyroid function and ensure her overall health. All members of the Advocate Health Care team, and all will be necessary year after year to keep this little girl smiling.
So, now you know a little bit about why I chose this particular team to represent in this year’s Chicago Marathon. But why run at all? These days there are so many different ways to raise money for charities, why choose to spend hundreds of hours training to run 26.2 miles? I am running because, for me, running is therapy. Running is what has gotten me through some tough times, and these past few months are no exception. Have a bad day at work? Go for a run, your stress will melt away. Kids are being particularly crabby and needy? Go for a run, it’s healthier than yelling at them. Receive a phone call that your child has an incurable genetic disorder? You have permission to cry and breakdown, then pick yourself up and go for a run, you’ll feel empowered. I run to make myself a better me for my family and my own sanity, but if my running can raise money to help kids and families that also turn to the Advocate Medical Team for their health, then it is a win for all involved!
If you have listened to my rambling up until now, I thank you. If you can and would like to donate, your generosity will go towards a great cause to ensure that millions of people have access to the care they need. Thank you for your support, and thank you for reading. Now that you know a little bit about what goes on in our crazy world, if you are ever in need of a laugh, smile, or a hug, stop on by! I know a little girl who can brighten the darkest day!
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